Charities establish new fund for research into rare disease
Howard Lake | 28 June 2012 | News
Children’s medical research charity Sparks, together with Action for A-T and The A-T Society, has established a new fund for research into Ataxia-telangiectasia (A-T).
A-T is a progressive neurodegenerative disease that affects around 20 children in the UK each year. Most children with the condition are wheelchair-bound by the age of 10 and few survive past their eighteenth birthday.
This is the first UK joint fund dedicated to A-T research. The first call for applications for grants up to £90,000, that could lead to treatments and cures for Ataxia-telangiectasia, was launched at the A-T Clinical Research Conference 2012 in Cambridge. The fund is particularly keen to receive collaborative applications between UK institutions and other international centres of excellence.
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The charity expects that grants will be awarded by the end of 2012.
William Davis, chief executive of The A-T Society, said: “Together we can make a much bigger impact than we could working on our own. Collaboration is the only way to make progress with a rare and complex condition such as A-T and our three organisations are showing the way with this first UK joint fund dedicated to this research.”
www.sparks.org.uk/research/researchers/
About Howard Lake
Howard Lake is consultant editor of UK Fundraising. He founded the site in 1994 and successfully sold it in 2022. As director of Giving X Ltd he is exploring growing giving on a massive scale.
He is the founder of Fundraising Camp and co-founder of GoodJobs.