Fundraising Everywhere - Legacy and In Memory Conference, September 2026

Never Say Goodbye

Howard Lake | 9 February 2009 | News

Screenshot of Never Say Goodbye, music video to raise funds for Action Duchenne

Edward Ackroyd is five years old and has Duchenne Muscular Dystrophy, which is a severe muscle wasting disease which leads to paralysis and limited life expectancy.

Friends and family have recorded a song and video ‘Never Say Goodbye’ to raise funds for Action Duchenne.

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www.sayhellotoedward.com
 

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