# Action Duchenne lobbies for Government funding

- Link: https://fundraising.co.uk/2008/06/19/action-duchenne-lobbies-government-funding/
- Published: 2008-06-19T15:33:10+01:00
- Author: Howard Lake

Action Duchenne, which raises awareness and funds for research into Duchenne Muscular
Dystrophy, has lobbied the Government to seek further funding for research into 
the condition.

Yesterday, boys living with the incurable muscle wasting disease, their parents 
and supporters lobbied MPs and marched to 10 Downing Street.

Although the gene that causes Duchenne was discovered in 1986, Action Duchenne says
that since then the Government has provided only £2.2 million of funding for research
and clinical trials for treatments and a cure.

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The charity called on the Government to allocate £30 million of funding for new 
Duchenne research and clinical trials, increase the number of Centres of Excellence
for Translational Research into this condition to cover the whole of the UK, and
to ensure that all people living with Duchenne are given immediate access to new
drugs and treatments.

Nick Catlin, CEO of Action Duchenne said: “The young people with Duchenne don’t 
have time on their side, we need this research to start as soon as possible so that
it can really make a difference.”

www.actionduchenne.org

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